1 Comment
User's avatar
Erin Moore's avatar

Back in those Twitter days is when we first connected too, Dave! Mental health is where I took AI.

After a medication induced mental health crisis with one of my kids and an absolute failure of our healthcare system in every single way (see https://tinyurl.com/33ajf9t7), I suddenly had the awareness that I needed something the current system isn’t capable of producing which is timely, personalized, accurate, and reliable thought partnership for informed decision making. It’s Hugo’s Principle, I use it to help me think.

I was able to input both qualitative and quantitative data curated over years - diagnoses and treatments and symptoms and assessments and lab reports, medications she takes, others she’s suppose to. How she’s responded under different circumstances at different phases in her life. Specialists and doctors notes, progress and setbacks and school forms and frustration after frustration after frustration. I asked it to look for intersections and offer considerations based on both personal experience and personal preference. We made sure to be clear about what she values so that ideas and insights felt supportive for productive. And together we built this plan - me, my kid, and the ChatGPT. For us, there was more to gain than to be lost in contributing such personal information to these models. If it might help someone else, it’s worth the risk.

The first part of the report is the summary of her pharmacogenetics based on genetic testing that she had done. I wanted to understand what treatment options would be most likely to help her based on how she’s built and metabolizes different medications. I don’t want to know what happens typically when you give a human her age this medication. I want to know specifically, scientifically, personally how this would work for her based on how SHE is built.

The second section was to help guide our decision making around medication use. I wanted to make sure that the kid and I both understood how it works so that we could have an informed discussion with our doctor about our concerns and apprehensions. Our care partners appreciated these conversations which just further informed these useful documents. I just never mentioned I was using AI as my other thought partner.

The final section was a plan that we could all get behind. This plan was informed by her doctors and medical history, evaluated by AI, enhanced through continued conversation, and my dear child is finally doing alright. She is pleased with her progress and the outcome of the things we’ve tried. Her doctors have assessed her as stable. She feels empowered in her conversations and decision making because she understands better and can be understood. AI holds the greatest potential in this pace, it’s truly revolutionary.

https://drive.google.com/file/d/1VDXVY9uxpDmpOgUnd-3_rQCs2HBmCFhw/view?usp=drivesdk

Expand full comment